Posted in News Our son’s terrifying illness is so rare only 28 other children have it… now we’re on a quest to find a cure December 29, 2024 Angus Powell, three, carries a rare mutation in the CRELD1 gene. The disorder it causes has now been named: Jeffries-Lakhani Neurodevelopmental Syndrome, or JELANS. https://www.dailymail.co.uk/health/article-14232411/Our-sons-terrifying-illness-rare-28-children-quest-cure.html?ns_mchannel=rss&ns_campaign=1490&ito=1490